My review of Hepburn and Bolden’s superb Transcribing for Social Research is available in the December issue of Research Matters magazine. This book is a great resource for anyone who wants to learn about the nuts and bolts of Jeffersonian transcription.
A short film is now available of our inspirational team giving a presentation at the Annual Social Work and Social Care Research in Practice Conference which took place at Belfast Castle on the 6th March 2019 on the theme of supported decision making.
To view the film, please go to the link here.
Colleagues from our research team gave a wonderful presentation on their experiences of working on a co-produced research project at the Annual Social Work and Social Care Research in Practice Conference on the 6th March at Belfast Castle.
Here’s the abstract for the presentation:
Making decisions about your own life is a key aspect of independence, freedom and human rights. Mental health law has previously allowed compulsory intervention even when a person has the decision making ability to decline intervention. This discriminates against those with mental ill health and intellectual disabilities. The Mental Capacity Act (Northern Ireland) became statutory law in May 2016 and will replace rather than run in parallel to a mental health law. A core principle of the new act is that people are “not to be treated as unable to make a decision…unless all practicable help and support to enable the person to make a decision about the matter have been given without success” (Article 1(4)). There are people who, without support, would be assessed as incapable of making certain decisions but with the appropriate support are capable of making those decisions, and so to not provide that support infringes their rights, undermines their autonomy and reinforces their exclusion from society.
The study was funded by Disability Research on Independent Living and Learning (DRILL) and was a multi-agency partnership between Praxis Care, Mencap NI and Queen’s University of Belfast. The study was designed because there is limited research evidence about people’s experiences of the different approaches which can support decision-making, Four peer researchers were therefore employed for the duration of the project and 41 interviews were conducted with people with mental ill health and intellectual disabilities in order to understand their experiences of supported decision-making, their preferences and ideas for how decision-making should be supported. This presentation will look at the process of co-production and the pros and cons of conducting co-produced studies which involve people with mental ill health and intellectual disabilities. Suggestions for how to overcome the barriers to successful co-produced projects will be given.
Edge, R., McLaughlin, A., Norris, B., Owens, A., Webb, P. (2019) Perspectives on co-production: supported decision making – experiences, approaches and preferences. In Public Health Agency, Health and Social Care Board, Building Research to Evaluate Complex Interventions in Social Work and Social Care: A Consideration of Methodological Issues, 6th Annual Social Work and Social Care in Practice Conference, Belfast Castle, Belfast, UK, 6th March 2019.
Support for decision making needs to be individualised.
Our co-produced research report on supported decision making for people with intellectual disabilities and mental ill health made a number of recommendations.
Take a look at page 44 of the report for further information.
Davidson, G. Edge, R., Falls, D., Keenan, F., Kelly, B., McLaughlin, A., Montgomery, L., Mulvenna, C., Norris, B., Owens, A., Shea Irvine, R. and Webb. P. (2018) p. 44
- Our co-produced research report is now available on supported decision making with people with intellectual disabilities and mental ill health.
- An easy read report is also available.
Decision making is a central aspect of people’s lives. Participants discussed the positive role which decision making can have in their life but also how it felt when they are not supported to make their own decisions.
Participants said there were three things that make decision making harder: the type of decision; the role of other people; and what the outcome might be.
Time was consistently identified as a very important factor in making decisions.
In terms of support, people said they would like: practical support including more accessible information; emotional support including someone to talk to; and sometimes the options to choose from.
The peer researcher aspect of the project strengthened the research process and was valued by participants. This is an evolving area of research practice that needs further critical exploration of the issues involved.
Davidson, G. Edge, R., Falls, D., Keenan, F., Kelly, B., McLaughlin, A., Montgomery, L., Mulvenna, C., Norris, B., Owens, A., Shea Irvine, R. and Webb. P. (2018) p. 6
Illman, J. (2016) Handling the Media: Communications and Presentation Skills for Healthcare Professionals
This book is primarily for healthcare professionals who may not know how to communicate with the media or who may be reluctant to do so. Written by an experienced medical writer, the book shows how the interests of journalists differ from those of healthcare professionals, while emphasising that the relationship between these two groups need not be an antagonistic one.
Because journalists will be interested in stories which are novel, universally appealing and controversial, the author argues that healthcare workers should engage with the media in order to avoid misrepresentation. But to engage successfully, communication skills need to be honed.
John Illman consequently offers concrete advice on how to respond to requests for a media interview and how to prepare for the interview once accepted. Particularly insightful is his discussion of “bridging” techniques, which are used to acknowledge and to respond constructively to difficult questions. This is an important skill to master where the agendas of the interviewer and the interviewee differ.
Useful guidance is also given on how to prepare and deliver presentations and how to use social media to communicate effectively. The advice on writing for the press and on pitching an outline of an article to an editor is similarly good and will appeal to readers who want to make medical journalism their career.
This is an excellent book. There is some theory in relation to journalistic balance, bias and law, but the focus is practical. It is well written and will certainly encourage the reader to believe that they can use the media to communicate with a non‐specialist public.
Review originally published in Reviews Significance , 14:2 45 doi
Our four peer researchers gave a wonderful presentation of findings so far for the supported decision making research project at the Knowledge Exchange Seminar (KESS), Parliament Buildings, Stormont, Belfast on the 7th February 2018.
My review of David Abernathy’s book Using Geodata and Geolocation in the Social Sciences has been published in the February 2018 issue of Significance magazine – the magazine of the Royal Statistical Society and the American Statistical Association. Why not take a look?
Our research team will be giving a presentation on Supported decision making – experiences, approaches and preferences at the Knowledge Exchange Seminar, Long Gallery, Parliament Buildings, Stormont on the 7th February 2018.
So why not take a look at the abstract and register to attend if you are around?
Making decisions about your own life is a key aspect of independence, freedom and human rights. Mental health law has previously allowed compulsory intervention even when a person has the decision making ability to decline intervention. This discriminates against those with mental health problems and intellectual disabilities. In May 2016 the Mental Capacity Act (Northern Ireland) became statutory law, although may not be implemented until 2020. In contrast to other countries this law will replace rather than be in parallel to a mental health law. This is a unique and progressive development which seeks to address the discrimination of separate mental health law. A core principle of the new Act is that people are “not to be treated as unable to make a decision…unless all practicable help and support to enable the person to make a decision about the matter have been given without success” (Article 1(4)).
There are people who, without support, would be assessed as incapable of making certain decisions but with the appropriate support are capable of making those decisions, and so to not provide that support infringes their rights, undermines their autonomy and reinforces their exclusion from society. There is very limited research evidence available about people’s experience of the range of approaches provided to support decision-making; what approaches work for whom; and what people’s preferences are for support. This evidence is urgently needed to inform the Code of Practice for the new Act and the wider implementation process.
This presentation provides a summary of findings from a research project which explored how people have, or have not been, supported to make their own decisions. It was funded by Disability Research on Independent Living and Learning (DRILL) and used a coproduction approach between disabled people, Praxis, Mencap and Queen’s. The project involved peer researchers interviewing 20 people with mental health problems and 20 people with intellectual disabilities, to gain an in-depth understanding of their experiences of supported decision-making and their preferences and ideas for how decision-making should be supported in the new legal framework.
If you are interested in literacy and the link between improving literacy and employability, then why not watch this excellent documentary about the work of the Fazenda-Escola Bona Espero in Alto Paraíso de Goiás, Brazil?
In the documentary, the reporter describes the work of the school over a sixty year period. The programme also includes interviews with former students.
Você vai conhecer neste documentário a história da Bona Espero, uma instituição esperantista que acolheu e alfabetizou mais de 600 crianças em situação de risco social da região de Alto Paraíso, no Goiás. TVSuprenBrasilia